Friends, this week has been hard.
Monday morning we had another fetal echocardiogram done at Texas
Children's Hospital. Good news was that there was no sign of fluid
anywhere on Lenah's heart. Bad news is that they detected that her
pulmonary valve is leaky. This is significant because the pulmonary
valve is used to replace the too small aorta and valve in the first
open heart surgery- the Norwood procedure. Our cardiologist was
hesitant to make any definite conclusions without talking to the
cardiac surgeons and before we have another fetal echo in two weeks.
If the pulmonary valve continues to leak or gets more leaky,it seems
that there is really not much that can be done for Lenah surgically
or otherwise. My prayer to the Lord since the beginning of this
journey is that He would lead us clearly each step of this journey.
Of course, I told Him that my preference would be for her to be
healed and that this would all go away. Second to that, I just
really didn't want to have to watch my baby and my family suffer
through months of surgery, hospitalization, and separation. I
especially did not want to have to make a decision as to whether to
even attempt surgery in the first place or not.
It seems like it would be easy. You
just do whatever you can to save your child, right? But in the back
of my mind has always been the thought, save her from what? I know,
that I know, that I know, that if my baby ceased to be alive at this
very moment, her very next moment would be in the presence of Jesus.
How could that ever be a terrible thing? Is prolonging her earthly
life, no matter the suffering, really the best thing for her? For
us? I know we are not the first people to navigate these tumultuous
waters and I wish that no one else would ever have to traverse a
similar path after us. But here we are and it stinks. The flip side
is do we avoid suffering even though that we know that out of
suffering can come amazing things...beauty from ashes and such. Do
we deny the possibility that there is a greater purpose even in great
suffering? I think I have cried more tears in the last 3 months than
I have in all my previous years before.
Those that know me, know that I have
a hard time “enjoying the process”. When something needs to be
done I like to get it done and get it done now or avoid it all
together. Not that this is something at all to be enjoyed, at this
point I'd just like to be through this valley. I am tired of this
process. The last trimester of pregnancy can be difficult under the
best of circumstances. Right now it seems ….I don't even have words
for how it is.
So, I guess for now our greatest
needs have not changed. Please pray for us. Our next fetal echo is
scheduled for August 6th. We just ask that the Lord would
lead us clearly. Thank you for praying.