August 30th Update
Today I had an anatomy ultrasound done. Lenah is growing right
on schedule and everything looks good besides her heart defect. Her
weight is estimated at a smidge over 6lbs. She is also finally
vertex/head-down, which tells me she is getting ready. She has been
transverse or breech in all previous ultrasounds. It looks as though
my c-section will be scheduled for September 23rd. So her
birthday will be exactly two weeks after her big sister Sofia's
unless Lenah decides to make her own unscheduled appearance.
I had a cardiology consult with one of the pediatric cardiac
surgeons last Tuesday. I have heard all good things about him from
many different sources. I liked him. He seemed a bit like the
engineer-minded type of person. I think that is probably a very good
thing for a cardiac surgeon. He said that all of the information
that they have gathered from the fetal echocardiograms is very
helpful but there is so much that they don't know until Lenah is out
and on her own and they see how she does on her own and get
measurements from a transthoracic (chest) echocardiogram. He said
that her particular presentation could actually need a less
complicated surgery than the open-heart Norwood procedure to start
with, but we will not know everything we need to know until she gets
here.
I find myself being far more concerned about the logistics and
planning care for my older children and balancing that with time at
the hospital with Lenah than I am about the “scary” life and
death decisions. I absolutely hate the idea of leaving my sweet
little baby by herself for even a moment- it makes me quite nauseous
to even think about it. I can't really even wrap my head around it
all. I am having trouble sleeping and I feel like I will never get
everything done that I feel needs to be done in the next three weeks.
I desperately need peace in this storm. Once again, I covet your
prayers. I am sure that it is in part due to the prayers of our
loving friends and family that have helped to sustain us through this
time. Thank you all once again.
Lenah's mommy- Edie
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