We arrived safe and sound here at the farmhouse Thursday night around 6:45. Our transport team was very kind and helpful. Lenah slept peacefully all the way here. The transport driver put together Lenah's pack and play for us. He told me that he doesn't yet have children, but that he wants to have children. I'm sure he will be a great dad someday. Papa had been looking at the instructions before we arrived , but I think it may have been hard to concentrate under the circumstances. I was completely unable to concentrate on putting it together as Lenah had started crying a little after we arrived and needed comforting. I was very thankful for the assistance.
The hospice personnel arrived a little while after we did.
They were very compassionate and caring. There was a lot of
paperwork to be completed. There were some details about what kind
of IV fluid/nutrition she would be receiving here that were not what
we were expecting. Thankfully, that was remedied Friday. We had to
have special approval for the TPN. Also, one of our doctors at Texas
Children's was extremely helpful in this process. The hospice
coordinator commented that he he was very personable and had given
direct contact information to her in case we needed any additional
information and that she was somewhat surprised by that.
I am thankful that we have had very caring people taking care of
us at every juncture of this journey. They have helped make the this
terrible situation bearable.
I have to also tell you about another wonderful blessing we
experienced during the last few days and the incredible timing of the
Lord. James has been needing to replace our '97 Honda Civic for
awhile now. I can't believe it is still making it on down the road.
He had been researching gas efficient vehicles for commuting to work.
Back when I was seven or eight months pregnant I had looked into
buying a Toyota Sienna or something like it that would be able to be
parked in hospital garage parking. The Sprinter van I drive is too
tall to fit in any parking garage. I found out that there is an open
parking lot across the street from the Pavillon for women at Texas
children's hospital, so I did not need to find a replacement vehicle.
During my looking at Toyota Sienna's I met a very kind salesman that
very sincerely told me that he would be willing to help us find the
best priced vehicle for our needs. On Wednesday morning when James
and I spoke in the morning he said that he needed to find a new
vehicle if he was going to have to drive to the farmhouse every
weekend. I fished that salesman's card out of my wallet and gave
James his contact information. James went to see him at lunchtime
and by the time he got off of work, he had a brand new Toyota Prius
at an amazing less-than-invoice price. Thursday afternoon I followed
the medical transport ambulance in the Prius to the farmhouse. James
brought the children up Friday night in the Sprinter van. Everything
just fell into place perfectly. I am very thankful for these
practical blessings we have received.