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Tuesday, October 8, 2013

Tuesday, October 8, 2013 Update

Look who was awake today:

She was very alert for a good 15 minutes even though she is on a very strong pain medication.
 Her heart surgeon came by to talk to me today.  He was very surprised that she is still here.  He said last Tuesday he was pretty sure she was finished.  What a difference a week makes.  The surgeons are still discussing whether or not they need to do a liver biopsy and cholangiogram to rule out biliary atresia.  Fortunately, they can't do anything until she recovers from the NEC.  Hopefully, her liver labs will be normal by then and we can just skip that whole discussion.  That is a road I am hoping to avoid traversing.
  Today her bilirubin was down to 5.7 from 6.5. She had to have another blood transfusion today. Her belly is still swollen and tender, but looks a little less "tight" to me today even though it is still measuring around the same.  Last night they removed her sutures from her chest and abdomen.  She has some areas that looked a little unhealed, so they put a special dressing on them and added another antibiotic to her IV. She is still on the ventilator. Her temperature, blood pressure, heart rate and oxygenation have all been within range.  Her calcium and potassium  are also within range. They increased her pain meds today.

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