Yesterday evening our sweet friends Joel and Rachel came to visit while Edward and I were at the hospital. They very lovingly anointed Lenah with oil and prayed for her. After they left, Edward got to hold his precious sister once again.
Then today, Sofia and I went to visit Lenah. Sofia was f.i.n.a.l.l.y. able to hold Lenah. There has been a bit of sibling discordance over this issue.
Lenah has been having quite a bit of nausea, gagging, and vomiting. They had tried to start feeding her, but had to discontinue feedings as she was not tolerating them. Her tummy is still quite swollen and seems to be making her uncomfortable. They have been weaning her off of the ventilator. She can not go to hospice, home, or to a step down unit if she is on the ventilator. If she can have the ventilator removed, we would be in a private room that we could actually sleep in and be with her all the time. The children would be able to visit her more easily as well. At this time, I don't feel comfortable bringing her home to pass away. If she were our only child, that would be different. I'm just not sure how the children would handle that.
Tomorrow at three in the afternoon James and I will be meeting with Lenah's doctors and caregivers to discuss her care plan. We still hope for a miracle. Please pray for Lenah and all of us.
Baby F will soon be going home to her Creator. Please pray for her family. I do not know Baby E's condition as I have not seen his parents, but he is still in the CVICU. Also, please add another E to your list. She is 4 and is currently on a Berlin heart. She was on the transplant list, but has had some setbacks and it is not certain if she is still eligible for a heart transplant. Her parents have experienced the loss of a child previously. I can not even imagine. E's momma has been there constantly for her and loves her very much. She has another child currently being cared for by her husband and family. They live about 3 hours from Houston. At least one other family-maybe two are saying their goodbyes as well. I do not know these families as well as the ones previously mentioned. But the Lord does, and he hears our cries for peace and mercy. Blessed be the Name of the Lord.