To read Lenah's story from the beginning, just go to the side bar under blog archive and start reading from May 2013.

Wednesday, November 27, 2013

Wednesday, November 27, 2013 Update

  Today we met with Lenah's doctors.  We will be taking her off of the ventilator on Friday.  I have no idea how she will respond to this. Regardless of the outcome, we will not be putting her back on the ventilator. Ever.
  Yesterday, Lenah had been moved to a semi-private room because they had a lot happen in the unit with other patients.  One of those patients needed the private room.  Today, they moved her back to a private room.  Room #7. Seven is my favorite number.  This room also has a western exposure and I have seen some amazing sunsets from across the unit through this window.  It is a good room.  Lenah was bathed in sunlight when we found her in her room after our meeting.  For the first time ever.  My heart grieves over this.
  Please forgive me. I am not ready to share today's photos.  I also am not ready for the coming days. I am, I think, ready to let Lenah go.  I just know the next few days are going to be the hardest of my life thus far.
  I finally looked online at infant caskets today.  Never thought I'd be googling that.

I hope you all have a wonderful Thanksgiving.

I will be thankful in His giving.

And as unbelievable as it may seem, I will be thankful in His taking away. And not because I feel obligated to.

Blessed be the Name of the Lord.


  1. We don't know each other but I want you to know I have followed each day's posts since a friend told me of your dear family and your sweet baby Lenah. My heart grieves with you for the decisions that have to be made and these upcoming days that you must face. Your love for Lenah in not wanting her to continue to suffer is pure and unselfish. She has taught us all lessons in love in her short time here. She is a beautiful daughter of God. I know you will cherish each moment He gives with her. Thankful for His mercy and comfort. Praying for each of you. In His Love...the Harrison9

  2. I an so Sorry For the Grieving You are doing In What Should Be Such a Happy time Of Enjoying a New Baby. Lenah has been Dealt a lot for Such a Little One to have to Deal with. It Pains my heart for What you must be going through. You Should be getting to think of what you would buy a new baby at Christmas time Not What you will be Laying her in to Meet Our Lord and Saviour. Hope she rest Comfortably and May the Sunlight coming in her window Bath her In Beauty.

  3. my heart grieves greatly for you and your family. i have no other words...

  4. My heart grieves for you as I know how it is to let go of a child. I will be praying. I want you to know that Lenah and your family has touched my life in ways you will never know. I pray for peace for you and your family.

  5. I have been following Lenah since before she was born and I feel such a connection to her since we have a "Lina" of our own. I am heartbroken at the outcome because I am only human. I know in my heart she will be in a glorious, wonderous place but my selfishness overcomes me. I know this is the hardest time in your life and know that I am there with you in spirit even though you do not know me. I get such inspiration from your strength. Your faith is a testament to me every time you post. Thank you for sharing your little girl and your family!